Coronavirus III: The Charm
Welp...
I honestly have no idea why I'm here, here as in this website updating this blog with that old email address. I realized I hadn't updated in a while, and I feel like that's how I always start these posts. It's been a few months since our second wave, and now we're into our third. Hat trick! If you have no idea what I'm talking about, welcome back! I have some tough news for you and you may want to sit down but please do so at six feet away.
The pandemic has left me feeling...laughably defeated. In one week it'll be a year since IBM sent us packing. Well, not packing, but they sent us home not knowing when we would return. In the beginning, there was a lot of optimism. We'll ride this out the best we can and be back in the office by September! It's currently March and I'm still very much isolating in my home, and it's because the situation in the Czech Republic has become a catastrophic failure.
We've had rules and restrictions against covid in place the entire time, but last September folks began scratching their chins no longer covered by masks and pondered why our once very good numbers (which only occurred when we followed the steps of every other country in Europe) were now quickly becoming very bad numbers. The Czech Republic at one point was actually the last country in the EU without a covid-related death. Pretty impressive for people who don't give the flyingest fuck about regulations in place or enforcing them. That public Prague dinner send off after the first wave really caught us with our pants down, probably because no one was wearing pants anymore.
When the second wave started to gather strength in mid-August 2020, I was sheltering myself before any restrictions were in place. And honestly my situation hasn't changed because I still don't have a choice. Regulations didn't need to be active for me to observe proper social distancing protocols and limiting my interactions with others. I didn't renew my tram pass because I hardly ever take public transportation enough to justify getting one. I wore my mask indoors and outdoors. I had opportunities to leave and go be social and frolic or whatever it is we used to do, but I didn't. My new normal was having each day be exactly like it was the day before. Around 5pm each day, I switch to my personal computer from my work computer and stay in the same place, typing at the same speed and visiting the same websites.
While many new regulations have been introduced, they largely haven't affected my day-to-day Liz stuff. I'm still indoors, I still show up to work on time, I still need to tire Gossamer out around 11pm. I did get a blender in January and that was a real game changer diet wise. I got new glasses on a wild crapshoot spawned from an Instagram post I saw at 3am. I bought an obnoxiously loud Hawaiian shirt I definitely don't need. All this was orchestrated from the same table in my same apartment with the same movie on in the background.
However, the third wave regulations are fierce, fierce because we can't afford to fuck this up again. We had two pretty good chances, but we burned that bridge during the public dinner on the literal bridge to celebrate "the end of coronavirus." Each county border is patrolled by police and/or the military. To enter the adjacent county, you need formal documentation from your employer. The curfew was mostly abolished as our freedom of movement is extremely limited anyway and we're not supposed to be out unless we're gathering supplies. Pretty much everything aside from grocery stores, mini marts, pharmacies, medical facilities, banks, and the post office is closed. You need to walk your dog within 1km of your home. We also need to wear ffp2 respirators. No more cloth masks, and if you don't have an ffp2, you can wear two surgical masks at the same time. Again, all these changes by and large don't affect me as a health-conscious person. What does affect me is the covid vaccine and when I can get it.
The vaccine rollout in the Czech Republic has been horrendous. The first inoculated were citizens over the age of 80 and healthcare workers. Supposedly my group of "high risk" was also supposed to be included in that starting 1 January. But it's 5 March. We didn't purchase enough vaccines and we don't have the capability to store them. Other European countries are even donating vaccines to us. If Trump was still president he probably would have thrown paper towels at us. The Czech government is in talks with China and Russia about procuring some of their vaccines, and of course there's been a lot of push back from the Czechs. Russia anything is bad, and like...I get it. You don't just become a Soviet satellite state overnight (well, actually you do). This trend of dismissing the Russian vaccine because it's Russian seems silly. Some could argue science has taken the place of god in the Motherland over the last 100 years, and time and again they proved it, you know with that whole moon thing or whatever. There's also a crazy amount of xenophobia increasing above the usual levels here because the Chinese vaccine is Chinese, home field advantage for racists and coronavirus. But our hospitals are maxed out. High school kids are doing shifts in hospitals and doing on-the-spot training because our healthcare system is exhausted. Poland, Germany, and Austria have offered to take in Czech patients because there aren't enough people here to care for them, and you know you're fucked when Poland is the one offering to lend a hand. Acute procedures are getting cancelled in hospitals and clinics across the country, and we still can't wear our fucking masks right.
A friend took this TODAY. TUH. DAY. We are one year into this thing and this woman, not only is she sporting a nose dick, but she's almost going out of her way to not wear it and is refusing to observe the structural purpose of the metal piece in the bridge of the mask. That's the point of the mask. One time use! More effective! YOU'RE SO CLOSE.
Of course none of this is enforced. Obviously enforcement means money and money means...something here, I'm almost sure of it. Maybe a bribe would work instead... I'm not trying to insinuate this woman will kill people by nosing around while on public transportation. It's the careless, lazy attitude that's easily in view and adopted by others is what will kill more people. This is why I don't have a tram pass. This is why I leave my home once, maybe twice a week if it's absolutely necessary. I know what I can't be around, and it's been like this for one year.
The good news (hahahahahaha) is that the vaccine registration website has recently been updated with information that may prove to be factual! Supposedly I can have a GP or a care specialist register on my behalf as they're more official than me. Imagine that, a doctor being more official than me, the woman who bought a Hawaiian shirt in January for no reason at all. I emailed my diabetologist with the information on the website in both Czech and English to nullify any translation errors. I realize I did this on Friday at 6pm, and I have inadvertently created a minimum of 48 hours of waiting time for myself, but it's the first step.
And that's all I can do. A lot of times I feel ultimately helpless. A couple of weeks ago I entertained the idea to fly back to the US to get the vaccine, but after some reflection on the logistics of what would be needed for this to work seamlessly (vacation time, no missed appointments, appointments happen as scheduled, open and available airfare, crossing borders, going through layovers and transit points not in the Czech Republic and abiding by their rules and restrictions, getting the negative test to travel and hope that will get me all the way through to Seattle, waiting the weeks between the two doses, isolating between doses in a safe environment) was really overwhelming.
I know it's absolutely not healthy, but I caught myself doing the "man if times were normal and I had a lot of money, what would I be doing?" imaginary thinking that makes us immediately depressed. And while it was very escapist, it was pleasant to take a momentary break and think about owning a ranch in New Mexico and having one or two horses and some really big dogs and Gossamer, a wraparound Roche Bobois Mahjong sofa and a big telescope on the extended porch, an art studio set up for photography, painting, welding, and sculpture, a kiln, sprawling carpets, only wearing caftans with big glasses and no shoes except for cowboy boots, amateur archeology, huge windows to watch the thunderstorms in June, roasting pinion and maybe marshmallows, writing in front of a fire all year round, trail riding after breakfast, sometimes owls hide in the eaves, collecting arrowheads, roasting jerky in the smoker...
...or something like that.
In this alternate fantasy where Liz has her shit together, I can never tell if I'm alone. I think it's because it's very selfishly me and it doesn't take anyone else into consideration. There's a difference between self care and being selfish. Is collecting arrowheads selfish? The jury is still out and very socially distanced on that one. I'd like to not be alone, but in this fantasy I'm alone.
The part that hurts is that even if all of this was available to me, I'd probably still be doing what I'm doing right now: typing on a computer wishing I wasn't alone.
Berning Bridges
It's really strange to witness the beginning of a general election from overseas. After the last guy got elected in 2016, I was like
and got the fuck out of the United States. But it wasn't just Trump. I left the United States for a whole slew of reasons, and it's difficult to narrow it down to just one so here's the lot:
1. Trump does not represent what I stand for as an American.
2. Taking the above into account, I don't trust Trump to do the right thing for me as an American citizen, a woman, an insulin dependent diabetic, an alcoholic, a student loan debtor, and a democrat. I list "democrat" because the recent onslaught of diplomatic shenanigans and blame games brought to you by president Fuck Face.
3. In the Czech Republic, I don't make enough money after the exchange rate to pay off my student loans. I'm essentially saving myself $30,000 if I continue to live here for another 15 years.
4. Considering the on-again, off-again relationship with North Korea, I feel safer in the European continent rather than on the west coast of the United States. While I'm closer to the actual Motherland, it sort of eases me that Putin and Trump go at it real dry behind our backs so I don't think there's any real danger.
5. The cost of living in Seattle has turned from expensive to fucking atrocious. I like living alone and I'm past the point in my life where I can live with a person who isn't putting it in me on the regular.
Part of the research I did before I moved to Brno was all of the bureaucratic red tape I would have to go through, but not just on the Czech side. I wanted to see what happened to my drivers license, my permanent address, and my opportunity to vote. I wasn't renouncing my citizenship and declaring war on the United States (yet) so my rights as a voter are recognized overseas. I thought "hey in four years, we could probably fix this."
"Fix this" is pretty vague when it comes to the assertive action needed with the burgeoning clusterfuck of what's currently going on in the White House. Trump said a while back "if you don't like it here, you can leave." The guy didn't have to tell me twice, plus I was already gone. I waved to him but I don't think he saw it.
I've been able to continue supporting Bernie from abroad. He was my first choice in 2016 because he speaks to my issues directly and he's been fighting for me since before my existence. Some call him a career politician, but I don't see a problem with that. He's made it his life's work to help Americans, the people of Vermont, and those who are timelessly marginalized by the right. It would be different if he was taking corporate money or was in cahoots with billionaires, but he isn't. And he's not just going to take care of me. He's also going to take care of you, no matter who you are, and I can get behind that.
But I don't consider myself a "Bernie bro," and to be honest, I don't think I've actually ever encountered one in real life or on the internet. The people or trolls who have been described as intentionally argumentative, biased, blind, angry, and stubborn remain elusive to me. There's a huge difference between the people whose first choice for president is Bernie Sanders and the people who become militant and extremist with his cause. Supposedly people have had the displeasure of encountering Bernie bros, and I'm not discounting their experiences. It might be because of the company I keep or the things I choose to expose myself to, but I think they might just be passionate idiots who occasionally enjoy a good political circle jerk.
Part of the reason why my support of Bernie has remained consistent is because of his democratic opponents. I really did like Elizabeth Warren and I don't think she's the corporate criminal who people are making her out to be. She still has yet to endorse any one person in the race and it would flip everyone out of she endorsed Bernie, but I don't think she will. She still has connections to the establishment, the same establishment of lying dog-faced pony soldier candidate Joe Biden.
I had to get someone over the age of 65 to explain to me what the fuck a lying dog-faced pony soldier is because that's the world that Joe Biden lives in, an unrelatable John Wayne hellscape with mysteriously grandiose stories about the weird neighbors in the 1950s. Biden looks like he could get in a fight with a parakeet and barely live to tell about it.
But Joe Biden scares me, and not because of his linguistic gaffs that have surfaced as a result of the mainstream media. He scares me because even though his attitude isn't exactly like Trump's, he won't have my best interests in mind. He has a horrible track record with women, the LGBT community, pro-war senate votes, the criminal justice system, and marijuana use on a federal level. Every candidate at one point or another has said "we need to combat prescription drug prices." Cool. Agreed. But I don't think Biden has spent enough time with real Americans who have real medical issues. His son had cancer and his son died of cancer, but the Bidens aren't facing the reality of having to choose between life-saving medication or paying rent, going to Mexico to buy medication, starting a GoFundMe to afford required medication and care, or seeking out cheaper medication that's intended for dogs. After analyzing some sources/tweets, it became clear that if Biden were the democratic nominee, I wouldn't be able to return to the United States because Trump would run rings around that guy (although sign me up for those debates because they're going to be a fucking riot). Living in the Czech Republic isn't what I signed up for, but this is my life now. Ideally I'd like to go back to living where I was before because even though it's stupid expensive, I miss the life I had in Seattle. A Bernie Sanders presidency is my best bet to returning home and ending this whimsical saga abroad.
But people have their concerns about Bernie, too. He had an emergency stent put in but he got right back on the campaign trail. He remains mentally lucid, aware, and doesn't say anything off book that would put him in hot water. There's also this rampant fear of communism within the older communities in the United States. Communism has never been an issue in my lifetime, and it continues to not be while I live in a former Soviet satellite state. The Dubya administration bolstered their efforts in making terrorism the new fear instead of communism. We had terror alert levels, commemorative 9/11 plates, and additional precautionary measures in every FAA security line at every goddamn airport, which made stand up comedy infinitely worse for a number of years. And now every Trump supporter who lived through McCarthyism can return to using communism as a fear tactic. (I do want to point out that communism is a political system and socialism is an economic system because some dudes in my Facebook feed constantly like to disagree despite the evidence and testimonials). But in 2008 we elected the guy with a middle name of Middle Eastern descent, so maybe one day we can have hope again.
The one concern I have with Bernie is that I'm not sure about his expertise in handling foreign policy. He's a career anti-war guy and I completely agree with that. However, when it comes to participating in negotiations, diplomacy, and other events on the world stage, I don't know if he could do it. He's a guy who would definitely be able to take care of things at home, and maybe that's what the United States needs. Maybe we need someone to focus on fixing shit at home instead of barging our way into other country's issues like it's our national past time. Maybe we can actually fix this.
If Biden gets enough delegates to receive the democratic nomination, I'll vote for him. I've seen people say "he's just democratic Trump!" and while there's some truth to that, I think Biden would be able to approach other nations of the world with more tact and grace instead of crashing into a fake painting on the side of a rock like Wile E. Coyote each and every time. If Biden's the nominee, I think it would be a complete disaster. But those debates though...
I don't like waiting out the results of this election because it really does determine my future as an American living abroad. Usually when there's been any developments made with the primaries or coronavirus, I find out about it when I wake up and the majority of the people I know are making their way to bed. I'm hoping that the states whose primaries are held today can see what a difference their choices will make now that it's down to Bernie, Biden, and dark horse Tulsi Gabbard.
Bleach Mode
Last post of the decade! WooOoOOOoooO!
Nope. That's not what this is gonna be. Life didn't really get better, it just got different. The last two entries here were super depressing so hopefully some kind of a yearly wrap up will bring out the better instances of 2019 instead of the two that really destroyed me.
In 2019, I only had to go to immigration one time. One. Time. Last year I think I had to go eight or nine times to the decrepit little office on the outskirts of Brno where the clientele mostly looks like the third class cabin from the Titanic. Lots of phrase books, interpreters, people getting handcuffed, some people who just said "fuck it" and went down with the bureaucratic ship. After solidifying my position with IBM, I got to drop off my contract with a shit-eating grin and not care so much that I was getting yelled at in Czech. Again.
Getting yelled at in loud Czech is a common facet of an immigration office visit. Most employees there can actually speak English, but they won't. Passively armed with the pseudo-Czech I know, I was able to slide my IBM contract under the glass and give a woman who has zero time for me a quick smile. Pieces of paper were stamped and I signed where I was pointed to sign and I left. Twenty minutes, in and out, and I'm good for another two years. Usually this process takes a lot longer.
I'm not going to say my position at IBM is easy. The job itself is actually quite simple, but the communication with my team and other technical teams based around the EU can be challenging. I spend my time double, sometimes triple checking the phrasing of emails or the instructions on a task just to make sure the air quality of my snark is perfectly clear. A lot of my time is spent in Excel or IMing other folks on my team because we all have our headphones in but refuse to have a real conversation with the person sitting across from us. I really can't complain. I have good relationships with my superiors and I've only been late once in the last 11 months. I'm a 10 minute bus ride from the office and I can work from home two days a week if everything isn't really crazy, but January 2020 is going to be really crazy.
I also got to visit Seattle and Tucson in November like I did last year. I'm the only one on my team not taking any vacation during Christmas so instead I took two weeks during my birthday and Thanksgiving to go home. This trip was fraught with travel-inducing headaches but I was able to schedule time with the people I wanted to see and I got to headline my first club back home. I think when I come home next year I'm going to try to record my first album, but that's gonna depend on how much stage time I can get in Bratislava or Olomouc or wherever I end up performing beforehand. I have the material, but like last year, I was spending a fair amount of time on stage figuring out what jokes actually worked in Bratislava but not Portland, OR. I have a new closer in the US, but not in Brno unless I want to waste time explaining who the Zodiac Killer is (or isn't.)
In Tucson I spent time with my dad, step-mom, and uncle for some nuclear family time. My uncle gave me my favorite gift and it came with an unknown story. Before getting a job building Boeing planes during WWII, my grandfather practiced his machinery skills with small projects. He made a silver ring in an Art Deco style that my uncle has had for a number of years, and at Thanksgiving he passed it on to me. I haven't taken it off since I got it. In a way it's incredibly reflective of my grandfather's personality: simple, nothing flashy, but purposeful.
When I returned home to Brno, I came home to Gossamer, a cat I adopted in May after Patrick died. Gossamer's very different but equally cheerful and entertaining. His name was initially "Ragy," translating to "rags" in Czech. I sat around with him for a day before deciding on Gossamer, the delicately named big red hairy monster from Looney Tunes. He's a younger cat, definitely in his terrible twos. He's got a lot of energy but he has calmed down to snuggle since the weather got colder.
The woman who fostered him got him fixed and cleaned up and medicated after he had been on the street for an undetermined amount of time. When he was found at my neighborhood Tesco, he looked like he had just gotten sober so I knew we'd get along. She thinks he's a flame-point ragdoll because of his markings and serious floof and size. It's hard to imagine such a cat to be alone on the street. I'll never know his full story, but some people I've talked to actually don't think he was homeless and that perhaps he was abandoned, or a family moved and didn't take him. It makes me really sad to think about, but I'm happy I can give him a good life and all the little crinkled up paper he can handle.
Right now I'm writing this and Gossamer is playing with his new favorite toy, a condensed ball of his own hair. He's a little crosseyed and it makes me chuckle. He can't not look like that. Sometimes I ask him if he's a nerd and he has to look at me with his goofy expression. He's an amazing cat, a good companion. He likes stealing my glasses off of my face, headbutting me, and waiting outside my shower to get little drinks out of my drain.
One thing I'm going to try to do more in 2020 is travel because I'm a white woman in her 30s. It probably sounds ridiculous for a person living in Europe to say that, but it's true. Most of the travel I did this year was mostly little 18-24 hour trips for comedy, there and back in one night. These were mostly jaunts to Poland, and while I love Poland, I was technically at these places for work and wasn't taking the time really needing to relax or experience anything culturally significant. So I put down some money, something I hardly do because I'm...what's a good way to say this, thrifty as fuck, and I bought at ticket to Pearl Jam and the Pixies in Italy next summer.
After doing some research, it turned out the show at the Ferrari autodrome was the cheapest option because all of the tickets are general admission. The shows in Vienna, Budapest, even Krakow were more expensive and they didn't give me the option of exploring uncharted territory, so off to Bologna I'll go next July. I'm happy because I'll be doing some traveling just for me. Not for stand up or holiday obligations, but just for me. The concert is on a Sunday night so I'm debating about taking the whole week off and doing some exploring in the Balkans or something. I dunno, I have six months to figure it out but that doesn't mean I can't start the incessant, impulsive planning meant for late spring.
Now that I have some decent job security, I've been able to be more flexible with my appearance. I spent half the year platinum blonde and half the year bright pink. I got my hand tattooed and I put my septum piercing back in. I'm basically the person 23-year-old Liz wanted to be. I honestly don't notice myself looking that alternative except for when older Czech people stare me down with the same eyes that have witnessed multiple political revolutions. My look definitely isn't conducive to the semi-conservative atmosphere in Brno. In Prague or Vienna, I'm more anonymous, part of a seamless crowd. Now if I see people staring at me, I stare back at them because I'm no longer a shy, language-less foreigner.
So here's the official nonsense count for 2019:
Three notebooks/jokebooks
Six pairs of headphones
Two vaporizers
Three hair colors
Two bouts of serious depression
Six flights
One break from Facebook
Seven countries visited
Two new medications
Eight phone chargers
Five vet visits
Three books read
One minor heartbreak
Two refrigerators
Two new flavors of Skittles
One political demonstration
Zero hospital visits
Pretty good overall. The 2020 election will most likely decide where I'll be spending my time in 2021. But if I have to stay here, it's not the worst thing in the world. I'd actually prefer that. In terms of "resolutions," which aren't really resolutions but a romanticized list of things I'd like to accomplish once I get my shit together, there's only a few:
Write poetry more regularly
Pay more attention to gut instincts
Take some kind of Czech language course that isn't just Slavic memes
Continue good control of my blood sugar and a1C (6.3!)
This isn't too crazy of a list. I think I'm intentionally setting the bar low knowing I'm in a funk right now and I've yet to come completely out of it. I have the whole year to work on it once we stop hibernating.
Teach Your Children
When I was a teenager, there was always some sort of girly magazine somewhere in my house. The now defunctYM or CosmoGirl! would come in the mail or I'd pick one up for a flight to which I hadn't bothered bringing a real book with actual substance. 90% of the content is mindless entertainment. Sexual mishaps! The best night creams! 28 weird sex tips involving a set of silverware! Vests!?
However some of the articles featured were actually relevant to my romantic/relationships/sexual education. One article actually began with a quiz, and not a stupid "Lol which red panda r u this week based on your mom's astrological sign?" but a quiz asking for my experiences with children and if I'd hypothetically be interested in having them in the future. It was fairly short, nothing I needed to take a prep course for. And my results were unenthusiastic: maybe.
I absolutely love kids. One of my favorite things to do with my nephew is to "answer" a banana and hand it to him saying "it's for you." I'm sure he's so sick of it by now and I like picking on him with his opinions about the world around him, mostly the wrong information kids receive about certain stuff. When I was home for Thanksgiving, he was adamant that Ken (Barbie's Ken) was the same person as GI Joe. After some further insistence and some back up support from my mom, Laszlo still wasn't convinced that the army ranger and Barbie's boyfriend were from two entirely separate universes.
It sounds incredibly exhausting to have kids. Both of my step-siblings have kids and I've tried to be around as much as I can in Seattle while they're growing up. They're all under the age of 8 and at varying degrees of communication and exposure to the outside world. Laszlo has discovered YouTube and Maddy asks me to chase her. Emily can't speak much at the moment but she likes eye contact and high-fives. Their development has been cool to watch, and I love them dearly. But within the last eight years or so, I've decided that this enjoyment is best felt as an aunt and not a parent.
In short, I'm not having kids.
As I said above, it sounds incredibly exhausting to have kids, and I know what I'm like when I'm exhausted. I practically become a child myself when I've hit strenuous periods of overwhelming stress and the subsequent aftermath. If I could boil my stress down to a few factors, they're definitely immigration, bureaucracy, finances, and my mental health. If just one of these goes into awry, at least one other will follow until I'm contemplating my entire living situation. For instance, getting let go from my job last month sent my mental health into a spiral, which led to applying for jobs in UlaanBaatar. Eventually I caught myself mid-fall and recovered, but it took a while. I was never so low at a point where I felt like drinking, but at one point, the thought of picking up seemed more plausible than dealing with the inclement blow of losing my job. Is having kids just because I'm expected to or have the biological capability worth blurring the lines of my sobriety when things get tough?
I think about adding kids to that equation. Not even plural, but any living human younger than me. It feels selfish to say that I want to conserve my time and energy for myself but it's not necessarily a bad thing. I've chosen to live my best life, which I know sounds like I pulled straight from a 22-year-old's Pinterest board, but it's true. I also don't want to compromise the quality of life of someone else because there are indeed times where I cannot handle my own shit, and they don't deserve that.
You know, this bullshit.
Speaking of quality of life, my shit genetics are also a huge part of my decision. Diabetes doesn't run in my family, and before you make a joke like "hhhnnnuurrrr it's because no one runs in my family," please know that extending this disease to another human is not a type of guilt I want to feel. We already bring kids into this world without their consent. No microscopic embryo can hold up two middle fingers to an ultrasound to give its plea for non-existence. But imagine knowing that the person you're bringing in to this world may end up with the same difficulties that you currently live with or that may have ended someone else's life. It seems incredibly cruel to me. Having kids should be the best part of your life, not a regret or a burden.
There are varying studies about Type 1 and the likelihood of your offspring developing the same disease. Some studies place it around 8%, and others place it as high as 25%. Keep in mind these are just my genetics alone, not paired with someone else's who has the disease in their family, as well. I know what I go through on a daily basis to not die. I encounter extremely misinformed people who, at no fault of their own, have ingested information from the media that "diabetes" is synonymous with obesity, poor lifestyle, amputations, no exercise, food choices, etc. They hardly ever differentiate from Type 1, 2, and the two other types that affect people, so all of the misinformation gets lumped into one disease which everyone thinks I have. Type 1 used to be referred to as "juvenile diabetes," as it was mostly common in children, sometimes as young as six-months. But with factors of exposure to viruses, Epstein-Barr Syndrome, and other autoimmune disorders, adults can be diagnosed into their 40s. I was diagnosed at 22, roughly six years after I had mono, a virus which stems from contact with Epstein-Barr. Doctors I've spoken figure that my body started attacking itself around this time, but the symptoms of my pancreas giving out and no longer producing insulin didn't develop for a few years.
As of now I've been diabetic for 8 and a half years. Managing the disease has become second nature for me and I have to be incredibly in tune with my body to make sure everything is operating according to plan. I'm always on manual mode to ensure my body can function the same as a person without diabetes. The process is exhausting, frustrating, time-consuming, embarrassing, and difficult to navigate bureaucratically. The reason I'm handling it well (most of the time) is because I was diagnosed at an age where I could effectively communicate and use my entire vocabulary to describe different feelings or the difficulties I was encountering with my doctors, parents, and friends. A six-month-old child doesn't have that same luxury, therefore creating an entirely different path of stress for parents to navigate with a diagnosis. I don't want to do that to a child or myself.
Not to mention the financial burden behind it. There have been so many times in the last eight years where I've felt like a financial burden due to my disease. Knowing it wasn't my fault and wasn't avoidable didn't make it any easier. I didn't ask for this, so why am I paying for it? But not just paying for it, why am I paying so much?
To give an idea of what the financial costs associated with diabetes are, here are a few numbers for you:
Between 2001 and 2015, the cost of insulin rose 585%.
Insulin is the sixth most expensive liquid in the world at $9,600 a gallon.
In 2013, diabetics in the United States spent more on their diabetes medications and supplies than the NFL and NBA spent on advertising combined.
If you wanted to know how staggering the numbers are when it comes down to treating diabetes, that's what it looks like. I'm of the belief there will be no cure. It's become a joke in the diabetic community, only five to ten more years! If there's no cure, they keep making money off of us. If we have diabetes and want to live, we have to pay. Bringing a child into the world to possibly take on that burden seems like a death sentence, and if the price of insulin keeps rising, it may very well be. I know I've harped about it on here before, but the movie Arrival got to me in a lot of ways. It didn't only affect me as a language nerd, but it also struck me as someone who has the ability to change the course of life for someone else and ultimately know I could have done it differently. Arrival has been out since 2016 so I'm not going to do a spoiler alert because you had your chance.) Amy Adams has a daughter and at one point in the movie, we learn her daughter dies from an incurable disease. However, Amy has the ability to see time in a non-linear fashion as a result of communicating with the Heptapod aliens. Before she even has the child, she sees that her daughter will die from the disease at a young age. She knew the outcome of her life and her daughter's pain and demise, yet she went through with it anyway.
I can't be that person.
Initially I thought the decision to go childless was easy. I've presented myself with all the evidence, it makes sense, and there won't be any drawbacks. But the only thing I'm hung up on is the opportunity to name another human being. Most of my family's pets have had human-ish names: Jake, Elwood, Gracie, Edgar, Rocky, Cosmo, and Patrick. Patrick came with his own name and the rest were a family effort which took a number of days to come to an agreement. I can't have a kid just because I want to name something, someone. When you're growing up and you get a new puppy for Christmas or find a stray kitten there's a whole "well, what should we call you?" process. It's exciting!
Sometimes their name is an indication of their physical appearance. But most newborns usually look the same. There's no striking characteristic which will sway you one way or another about a particular label or comment on your child's appearance. But with humans, names aren't facts or statements. I had a short list of names I really liked, nothing complicated or tough to spell. I like them still, but at the same time they aren't names for pets; they are names for people.
Josephine.
Vivian.
Cedar.
So I feel like I've had to abandon this little list. They aren't terribly rare or elusive, just an extension of me and what I feel connected to. But choosing to knowingly make someone's life more complicated, arduous, or tragic, isn't worth a name. I know I'm making the right decision.
Plus if I ended up with twins I would fucking lose it. So there's that, too.
“I'm going to fight it, but I'll let it live.”
It's been a while since I've updated, mostly because life happened. I started my new job, acquired a new apartment, and basically quit comedy for the time being because those last two things haven't allowed me to travel or know my schedule anymore than two weeks in advance. Maybe I haven't updated because things have plateaued and there haven't been these urgent, bureaucratic developments to report on as the race to a two-year visa is over. I didn't win and I didn't lose the race, but holy fuck did it take a while.
I worked at Comcast in 2012 and 2013 in the company's last departmental resort to retain customers commonly referred to as "Loyalty," but anyone who has worked in the telecommunications industry will know it as "Retention." Between disconnecting or downgrading services, I was sometimes the last point of contact for customers who hadn't been using their OnDemand services like they imagined, or they only watched three of the 450 unnecessary channels for which they paid. Half hostage negotiator and half sales rep, I convinced people to step away from the ledge with three free months of HBO or Cinemax. I didn't feel like I was getting paid enough to be yelled at every day after my training wage dropped from $18.57 an hour to $12, so on my 90th day, I didn't come in. It took a week for them to call me. Since the turn over rate was so high in the "future of awesome," keeping track of employees was an afterthought.
I'm now in a similar situation in Brno. I'm training to be a manager in a call center alongside two others in Bratislava and Kosice, Slovakia. The technical support world is drastically different than that the sad sap, desperate world of retention. With technical support, people actually want their issues solved. With retention, people want to eliminate those issues completely. I went from bargaining to sleuth-like maintenance for customers who mostly live south of the Mason-Dixon line. Their accents are difficult for Czech people to decipher, and the Czech accent is quickly grouped into the generic Slav language pool by those who think communism is still a danger to society. Some of my Czech coworkers even had to change their Moravian sounding names to something more American, like from Djanna to Jane in order to woo the customer into thinking we're all on the same team.
For the last four weeks, I've been in training during the day and I'm now working second shift to align with US business hours. The six to nine hour time difference means no more early mornings as I'm doing my best to help the guy who mowed his lawn ("cutting his grass" as I explained to my Czech colleagues) and subsequently ran over his telephone line, or the woman who is convinced her modem would regain life by unplugging the power cord and leaving it unplugged. As much as I make fun of the southern accent and accompanying etiquette, it's nice to speak with Americans. I'm able to use the entire catalog of my vocabulary and not just the universal basics. One guy even told me he was glad I wasn't from India. I politely explained that our company is multi-national and we employ people with many different ethnicities and backgrounds. He told me, "I like the way you put that." I work with people from Egypt, Israel, Mozambique, Mexico, Ireland, Bosnia and Herzegovina, South Africa, Ghana, Turkey, Greece, and Zambia. Sometimes I feel guilty having the easy calls with even easier communication, but I hope my vernacular can rub off professionally.
Between eating an apple with some crackers for lunch and taking phone calls from properties which used to be plantations, I started looking for another apartment in Brno. I love the place where I am but it's very big for a small town (no one here knows where Seattle is) girl with her cat. I'm basically in a two-story townhouse. The size would be appropriate for a couple or someone whose best friend is always passed out drunk on their couch, but I don't fall into either of those categories. My kingsize bed is just a giant shelf where some of my stuff now stays because it's mathematically impossible for me to reach. I don't have any of my own furniture except for a nightstand. The flat came furnished with a glass chrome coffee table and boxy cream leather couches. It's like the Czech version of Weekend at Bernie's except there's less blow.
The new place I found is three blocks away from me in Kralovo Pole. It's on the fifth floor (technically sixth floor according to Europeans) with no elevator so my legs are about to get...and I think I'm using this right, "swole"? I'm on the very top of a yellow building with a red roof. The tram is about fifty yards away and I have a vecerka mini-mart across the street. It's sunny with windows in my slanted ceilings and it comes with a washing machine, a nook for a full-size bed, and an outdated wardrobe I'm going to call "Spare-Oom." I like it because it's small, not super small in the sense that I would need to disguise its size with the word "cozy." It will be unique to me with my own items and furniture not unique to a Czech cocaine dealer. The transitional housing I've been in was great as a jumping off point, but I need something that's mine. I'm justifying the continuation of my selfishness because I'm the only human I'm invested in taking care of right now. That's why I'm here in the first place. Also my new apartment is almost half of what I'm paying now so I'm feeling pretty good about it. A common thing for foreigners to experience here is being ripped off by landlords as soon as they discover their potential tenants aren't Czech. I was turned away from multiple apartment listings once they found out I wasn't Czech and that I was clearly writing my emails using Google Translate. But eventually I found a place where I can thrive alone and I move in September 1.
Last month I was lucky to have some traveling sober friends in town. We went to the oldest restaurant in Brno for a traditional Czech meal, caught up on program-related aspirations and developments, and discussed current and past travels through Europe. It was fun poorly translating in restaurants and shops, digging through Czech thrift stores for outdated fashion and even further outdated fashion, and not having to worry about the overindulgence of alcohol. My friend brought up that I should get a Czech Big Book (Modry Kniha, or "Blue Book" in CZ) so I could learn the language better since the AA verbiage is the same in every language. The next week I went to the one Czech AA meeting in Brno. I brokenly told the group of five I had moved here from the US and I used to work as a teacher but now I'm working in Bohunice. I told them I haven't had a drink in over three years and where I live, about kitty and my family back home. My Czech is still very "white" as in it's broke and is probably doing more harm than good, but I was able to use the language effectively to find the small sober community here. Due to working second shift temporarily, I haven't been able to attend and I found out there are no English-speaking meetings in Brno, so while I feel isolated, having two sober friends come visit further made me acknowledge I made the right choice. I couldn't do what I'm doing today if I had kept drinking. To be blunt, I'd probably be dead.
In regards to my non-hypothetical health, I'm doing much better than I was back in April. My diabetologist doesn't give me any shit and he trusts me to take care of myself and manage my dosages. He was able to order me the appropriate amount of test strips I need per month and SURPRISE I didn't have to cry on the phone to my insurance, endocrinologist's office, or the pharmacy. Trying to get my health straight in the US was like playing medical Three Card Monte every few months while the institutions play this circular blame game of finding the designated person to help me. Pharmacy says I need to talk to my doctor, doctor says I need to talk to my insurance company, insurance company says I need to talk to my pharmacist. If I need any prescriptions in CZ, I email my diabetologist, I pick up the slip, take it to the pharmacy, and they give it to me on the spot, no questions asked. Insulin only has a 30 day shelf life if it hits room temperature so moving a large supply by public transport can be tricky. Every time I pick up insulin, I also buy frozen veggies and berries to keep it cool on the sometimes 40 minute ride home. That's honestly the worst part about all of this. I'm sure there are easier ways to do it but I like making things hard on myself.
My dad told me about a story that was on NBC Nightly News last week about "black market insulin," something I was partaking in before I left last fall. Because the cost of insulin has risen over 1000% since 2006, the diabetic community has taken to Facebook and Reddit in order to seek advice and supplies that aren't prescribed by a doctor, which fortunately isn't illegal. One of the stupid things about diabetes is that we have to get refills for something we're going to have for life. Countries with universal healthcare sometimes give diabetic patients a pharmacy card that they simply show to the pharmacist to get the drugs and supplies they need to stay alive.
Alas in the United States, diabetic patients are turning to GoFundMe as their health insurance provider because the pharmaceutical industry knows we have to pay for insulin and going without is not an option. A guy in Minnesota aged out of his mom's health insurance plan at the age of 27 and struggled to pay for his insulin. He didn't meet his fundraising goal and he died. Other stories include diabetics rationing their insulin and up to 25% of people with the disease admit to cutting back because of the rising costs. Doing so can lead to blindness, kidney issues, severe nerve damage, liver failure, and DKA, the point where your body can no longer handle the excess glucose in your system and starts shutting itself down. Some people say I overreacted. Between a bad break up, losing my job, and having the repeal of Obamacare pass in the House, I couldn't stay in the US anymore. That entire day scared the shit out of me. No one believed it would happen. And it did. That wasn't a risk I was willing to take.
Fuck this guy.
Last week I went to buy some frozen food before picking up my insulin and I paid $6 for a $2,300 supply. I had wanted to live abroad for years and now was the opportunity, not for my life but also literally for my life.
It took ten months to the day, but I finally have my job, my kitty, and my apartment. I'm excited to have my own blank canvas and not have to share any of my square meters with a roommate. I'm going to build ledges in the skylights so kitty can have a place to perch and modify a bureau that's unique to me and no one else. It took forfuckingever but it's finally coming together. It's been exhausting trying to relax. I can't wait to get back to the point where I can stop caring. You know, in a healthy way.
